Today was a good day at clinic,even though it was a long day with all the driving.I am still getting used to this whole team approach to medical care...very different from anything I've ever had before.As soon as I get in the waiting room,I have to purell my hands and mask up.Every CF patient has to do this because of cross-infection because of the bugs in our lungs,in my case p.aeruginosa.Clinics are careful with this because they have found that social contact between those with CF,even casual contact at clinic,can lead to the spread of infectious organisms.
At clinic,I get weighed,vitals taken,pulse oximetry measured,have PFT's done,physical exam and bloodwork.Today my primary time was with the nurse practitioner.My PFT's DID go up just a bit,not much,but I'll take it!!!Thank you for your prayers!Last Jan.was my very first pulmonary function test and it had fallen about 15% since then,so my goal is to get it back to that number if possible.I am tapering off the the prednisone now over the next several days.My lungs had just a few crackle sounds on the left side.
I saw the social worker who talked about a second insurance carrier,so I had those forms to fill out.Then someone else came in to talk about consenting to be in the CF data base and about participating in research trials at some point.They explain everything so well and take a lot of time for questions,etc.The whole clinic visit was 2 hours and I never had to wait more than a few minutes between all of these people coming in the room.
All this time,Brenda King was sitting in the waiting room,stitching a penny rug,waiting for me.Next we headed to the ENT office for my next appt.THEN the best part...Wally's Waffles!!!SOOOOOOO good.It's a little place across from the hospital that I highly recommend!!!
Now,I'm ready for bed...
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