Wednesday I had a check up appointment at Akron.The PFT showed FEV1 at 43% and 1.02 liters.Not a big improvement,but I will take it.Also,my culture showed a bit of aspergillus and another fungus (I forget what it was called).She said it's very common with CF ...I just wonder how I get this stuff!!So now I'm on an antifungal med.They did another culture yesterday.She also thought that my laryngitis was caused by the TOBI,although I did have a bit of a sore throat too,which probably made it worse.I was still squeaking yesterday,but today,I'm finally able to talk again,still not quite back to usual,but close!I go back next Wed.when they will decide if the picc will be pulled or if I'll need to keep doing the IV's for a third week.The tobra IV is now changed to every 36 hours instead of 24.I have to keep closer track of that schedule.I can practically do the IV thing while I'm asleep,I'm so used to it.At 5:55 in the morning or midnight,I AM practically doing it in my sleep!
My dad is coming home from the hospital today(I think).He had a partial knee replacement on Tuesday.He seems to be doing pretty well.My sister will stay overnight to help him for 3-4 days.I wish I could help more...Please pray for him to heal well and for my lung function to improve!Thanks.
Kung Pao Grilled Cauliflower Taco
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