I readthis article today about cystic fibrosis and I could so identify! I am one of the square pegs of cystic fibrosis, I don't fit the classic form of CF and like Laura, I was diagnosed as an adult. I have one gene that is delta F508 (very common in CF) and the other one is so rare, there are only about 20 other people that have been identified with it by Ambry genetics. Even though I have gotten sick with pneumonia, bronchitis and sinus infections ever since I was a baby, I know I'm very fortunate! I think the more they find out about CF, the more complicated they are finding it to be. The geneticist at my clinic is trying to find out more information on those other people with my same gene to follow them. Some are pancreatic insufficient, some are sufficient like me. They have found that there are other things that factor into it, like where on the CFTR gene your mutation is, and some things are just still a mystery. For example, 2 siblings could have exactly the same two CF gene mutations...one could die in childhood, the other one could live well into adulthood. It's just too complicated for my little brain, but I also find it very interesting! All I know is that like Laura in the article (and I've been in touch with her by email), I'm doing sooooo much better since I've been on all the CF medicines, nebs, inhalers, vest, etc. My PFT's (lung function) have stayed at 50% since my last IV's. It takes time and effort, but it's so worth it!
I have 9 strawberry plants in my garden and they have really been producing the berries! I've been picking strawberries, or "strawbs" (as Kayden and I say) for a few weeks. We've eaten a lot plain and I've made several strawberry desserts...
Strawberry cookie pizza. I've made 2 of them.
and of course strawberry pie! I've made at least 5 of these. I guess it's good strawberry season is about over, however, my blueberries are beginning to ripen and these desserts would all be great with bluebs too!
My niece Katelyn graduated from high school two weeks ago.
Katelyn and my dad after graduation.
Her grad party was last Saturday. They had a small tent set up at their house, but wouldn't you know it...it was a rainy, stormy day! They couldn't set up and put table cloths on or balloons until right before it started. Actually, it cleared up enough and was OK during the party, from 4-7. However, a tornado went through here a little before 3. I had been doing my nebs and vest and therefore was oblivious to what was happening with the weather. Hubby was taking a nap and we hadn't been watching TV. The siren went off in town but I never heard it because of the treatment noise. As I was finishing up, I realized that I had to pick up 2 prescriptions before they closed at 3:00. So I hurried to the car and as I was driving out, I thought it looked really dark and thought I'd better hurry, it's going to REALLY storm...poor Mary Beth and her party! Just as I was turning onto the road where my brother lives, the siren went again and there was the loudest noise and wind and a large tree snapped and fell RIGHT BESIDE ME!! It fell the opposite way or it would've fallen on my car! I quickly drove to my brother's house, dodging branches which were flying all over the place. Then the rain started. I didn't know if I should run in the house or stay in the car. But suddenly the wind quieted. I have never experienced anything like this...I went right back home, forget the prescriptions! Hubby had woke up from the loud wind. There was no damage at our house except some shingles were blown off and part of our potting shed porch roof taken off. We had some very hard rain, which washed out a lot of topsoil and mulch in our back retaining wall. We couldn't do anything about it though, as we were leaving the next day for Pennsylvania, as Warren had a weeks vacation.
Here are some pictures of the tree that I saw go down. It doesn't look that big, but it was pretty good sized.
The next morning we left for PA. We were meeting some friends from VA and we had reservations to see the musical "Joseph" at Sight and Sound theater in Lancaster on Tuesday. We also met three other college friends that we hadn't seen in years. It was so good to see them! We had dessert and fellowship and took lots of pictures!
Me, Diane, Carol, Janie and Marilyn.
Ready to see the show.
The show was incredible, I highly recommend it! It portrayed the story in a very emotional way, focusing on forgiveness. I think we all had tears in our eyes at the end! We left late Wed. morning, stopping at Hershey to tour Chocolate World. It smelled so good!! Of course we bought some chocolate! We got home at about 7:30 that evening.
Kayden went to Bible school this week. I picked him up Thurs. and Fri. and brought him here. He just learned how to pedal and was so proud! We have spent the last couple of days just cleaning up the dirt and mulch that washed onto the patio.