I had an appointment today at Akron on Thursday, and it was decided that I need to be on the IV antibiotics for another week, plus they added a third IV med to the mix. I was also sent over to the Picc team at the hospital, because I knew my Picc was starting to feel a little blocked again, the meds went in ok, but it was more resistant to flushing. So they checked it out and used Activase and it busted up a partial clot. My lung function has not really changed in all this time...pretty disappointing! Hopefully another week will do the trick! Friday afternoon, the cf clinic called wanting me to repeat another blood draw, because it showed my creatinine level was high. So I did that here in town...the level was still high, so they pulled me off the one drug, tobramycin that could be causing this. (Creatinine has to do with your kidneys). So I'm just on two again and go back on Thursday afternoon...hopefully to pull the PICC!
In the meantime, W is sick with a cough and fever, missed two days of work. So he has pretty much banished himself to the basement bed or couch in the living room. I have stayed upstairs a lot. When I do go downstairs, I wear a mask. I wiped down the kitchen counters, door knobs, refrigerator handle, etc. today. And when I'm upstairs, we've been communicating by texting each other...he just learned how, so it's good practice!
Indian inspired Cornish fish pastie
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